I spent some time last night, withe the baby asleep on my lap, looking over the March of Dimes NICU Family Support website. I wanted some info on what it was like parenting a preemie infant. I remember when we were in the NICU somewhere in the middle of those interminable 16 days it began to feel as though it would never end, that he would go to high school and still be in the NICU. Lately I've started feeling that way about the extended "sack o potatoes" phase. Like maybe my kid will never smile a real smile at me, never coo happily.
So there I was, looking through the section where people post their own stories. And right away I was crying. The first title I saw was "RIP Hadley twins: forever our boys" and I couldn't even bear to click it. I clicked on another titled "Message of hope" only to find it was written by a 13 year old boy who had been born severely premature. He struggled his whole life with developmental goals, both physical and cognitive. He had life long breathing problems. But it was so upbeat. When it came time to select a high school he chose a regular HS rather than a special needs program, and he tries every day to keep up and fit in. Something about the earnest hopefulness was heart breaking: that a kid with such a good spirit should have so many challenges at so tender an age.
Emotionally sodden from my foray into family stories, I looked at the "parent to parent" message boards, still searching for some practical examples of what it is like to parent a preemie into infancy.
I went in feeling a little sorry for myself that I have spent almost ten weeks with a sack of potatoes, envious of those parents who get social smiles at 4 weeks, and sleeping at 8 weeks. Instead I found myself profoundly grateful. On the parent to parent boards I read a section about length of NICU stay. There were people whose children where in the NICU for
months. Four months, seven months, nine months even. One woman reported her child had been in the NICU for 170 days, so you can bet that even as days wore into months, she still counted each and every day in her heart. Another woman said that even a year later, she still carried so much sadness in her heart about the time her son had spent in the NICU and she wondered whether she would ever feel better.
So there I was crying on the couch, reporting to Terry all these people and the long long times their babies spent in the NICU. And all I could say is, "We are so so lucky."
And today at the pediatrician's office we got quantified evidence of how lucky we are indeed.
At his last visit for his one month checkup, Liam weighed 8lb3oz, which put him in the 5th percentile for his age (birth) group. He was 21 inches, which put him in the 10th percentile for his length by age group. Both of these measures were joys to us when we heard them at one month, for he was born with his length in the 3rd percentile, and his weight was not on the chart, even though he was big for a preemie.
Today at his second month checkup our little guy weighed 12 lbs and was 22.75 inches long. That puts him in the 50-75th percentile and 50th percentile respectively. I was so profoundly grateful for how blessed and lucky we have been. The pediatrician assures us that his cognitive milestones will catch up eventually as well. That he will, indeed, start smiling sooner or later. But until then it is wonderful comfort to know that all those round the clock feedings, and all that time holding him, giving him kangaroo care, is all paying off in good healthy weight gain. I know some parents view these percentiles as something to compete about, and I hope no one sees my reporting of them here in that light. For me it was not about him competing with some kid around the block. It was about desperately seeking whatever signs we could find that he was really truly going to be okay, that his early start to life wasn't going to set before him endless obstacles. And a little number like 50% is incredibly comforting to keep those fears at bay. Because I really don't want to be the woman who has to report one year later that I am still sad about his early birth. I want to move on, always forward, grateful for what blessings we have, and coping with what challenges we get.